Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together. 

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Recent Episodes
  • Karen,Emma and Oonagh talk about their campaign group #ThereForME
    Mar 23, 2025 – 40:45
  • Special episode; Kerry Davies joins me for a chat on International long covid awareness day
    Mar 15, 2025 – 39:05
  • Patrick Ussher book release; Understanding ME/CFS & strategies for healing
    Mar 9, 2025 – 40:22
  • Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold
    Dec 1, 2024 – 42:22
  • Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science
    Nov 17, 2024 – 41:32
  • Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress
    Nov 3, 2024 – 40:26
  • Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important
    Oct 20, 2024 – 41:26
  • Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more
    Sep 15, 2024 – 40:05
  • Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome
    Aug 18, 2024 – 40:35
  • Returning guest Rachel Jessey - lets talk about the gut!
    Jul 28, 2024 – 39:55
  • Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group
    Jul 14, 2024 – 39:09
  • The pandemic, the government and the general election
    Jun 30, 2024 – 39:04
  • Four years later!
    Jun 16, 2024 – 29:11
  • Guest; A. K. Davidson - Poetry for life and other chronic conditions
    Jun 2, 2024 – 37:58
  • Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS
    May 19, 2024 – 37:54
  • Alexander Taylor - Creating a safe space
    Apr 28, 2024 – 43:03
  • As requested....My experience on using a fitted Vagus nerve stimulator!
    Apr 14, 2024 – 27:40
  • NHS court hearing update with Kevin Digby and Rachel Hext
    Mar 17, 2024 – 40:05
  • Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid
    Feb 25, 2024 – 38:42
  • Q&A with Kevin Digby GA Solicitors
    Feb 11, 2024 – 35:12
  • Invisible? but you can see and hear me!
    Jan 28, 2024 – 21:49
  • Starting a new year 2024; not everything is perfect or planned
    Jan 14, 2024 – 29:39
  • Keeping healthy boundaries
    Dec 24, 2023 – 28:24
  • Jo Bullingham joins me from POTS UK
    Dec 10, 2023 – 38:44
  • The autonomic nervous system, gaslighting and feeling able to talk about anxiety and depression
    Nov 26, 2023 – 27:57
  • Jo Thomas personalised coach talks about Long term conditions, fatigue and her own experience of POTS
    Nov 12, 2023 – 38:33
  • Special guest Kerry Davies interviews me!
    Oct 29, 2023 – 39:47
  • Taking a break
    Aug 13, 2023 – 26:04
  • Robbie Williams....Why?
    Aug 6, 2023 – 28:42
  • Guest Merel; choir master for the Long Covid kids choir
    Jul 30, 2023 – 34:12
  • The bruising, the swelling, the rashes, the loss, the love, the hope!
    Jul 23, 2023 – 30:28
  • Rachel Jessey - from Benourished talks on the gut microbiome, vagus nerve and more
    Jul 16, 2023 – 36:54
  • Reema Ahmad: Discusses, Neuro linguistics programming (NLP), Trauma, culture and personal experience of having Long Covid in India
    Jul 9, 2023 – 41:28
  • Gez Medinger; talks about his personal journey, The Long Covid handbook, Youtube videos and more.
    Jul 2, 2023 – 38:49
  • Dr Sarah Glynne; Long Covid hormone imbalance, peri menopause, menopause and HRT
    Jun 25, 2023 – 40:14
  • Making Peace with my Long Covid journey
    Jun 18, 2023 – 35:02
  • My treatment, rehab, and symptom management journey
    Jun 11, 2023 – 36:04
  • What is restorative rest?
    Jun 4, 2023 – 31:37
  • Guest Shannon; Australia's vaccine mandate and living with vaccine injury
    May 28, 2023 – 38:25
  • David Osborn: Covid airborne transmission alliance (CATA), PPE, RIDDOR and the covid inquiry
    May 21, 2023 – 39:55
  • Oonagh Cousins; former professional athlete of the British rowing team on life with Long Covid
    May 14, 2023 – 35:30
  • Cognitive dysfunction or brain fog? and is this mistaken for mental ill health?
    May 7, 2023 – 33:34
  • Losing my NHS Job!
    Apr 30, 2023 – 37:34
  • Guest Harry Leeming; the Visible App, long covid, chronic conditions and much more
    Apr 23, 2023 – 35:20
  • Guest Respiratory Consultant Dr Asad Khan talks about Long Covid, treatments and his personal journey
    Apr 16, 2023 – 40:06
  • Seeing light in the darkness
    Apr 9, 2023 – 27:20
  • Guest Emily Bland; Clinical Physiologist and fatigue specialist
    Apr 2, 2023 – 34:58
  • Coping with crashes
    Mar 26, 2023 – 35:47
  • Post exertional malaise (PEM)/ Post exertional symptom exacerbation (PESE) Why is it so confusing?
    Mar 19, 2023 – 36:43
  • How are you?
    Mar 12, 2023 – 28:24
Recent Reviews
  • BodybuildingNerdsRadio
    Farce
    This entire podcast is a farce. “Long Covid” just means; “little brain”.
  • wilderness-sojourner
    Helpful and Validating Podcast for LongHaulers
    I first encountered Julie’s podcast when I had the initial thought to chronicle my own journey with Long Covid via a podcast. At the time, the only podcasts I found were from a medical perspective, which although informative, did little to provide an understanding of navigating everyday life with this diagnosis. Living With Long Covid was just that - a podcast about the lived experience of being a Long Hauler, the struggles we face, the lack of understanding and validation from the medical community, and even the moment-to-moment emotions triggered by our condition. I found her to be soft spoken but informed, relatable, and validating. I get something out of every single episode, be it practical advice (the Four P’s) or just a reassurance that I am not alone in the physical, mental, and emotional toll that Long Covid has taken on me. Whether or not you suffer from Long Covid, chances are high that you know someone who does, and also that there is a 10-30% chance of developing it yourself the next time you contract Covid. Thank you, Julie, for being so open and vulnerable with us, and in doing so, raising awareness of this life-changing condition.
Disclaimer: The podcast and artwork on this page are property of the podcast owner, and not endorsed by UP.audio.