Thank you so much for creating this information podcast for EDS. I have notice a few podcast stop after only 1 episode. Clinics around me have stopped their EDS clinics. My rheumatologist told me I “most likely” have it. My daughter and grandson were diagnosed a year ago. I did my research and can definitely see it in my family line. My daughter has Arnold Chiari Malformation, my grandmother had a hunch back and clubfoot. Nephews who are tall and skinny with long fingers. Brother who was able to stretch his eyelids, as children we competed on bending our fingers to our wrists, sitting with our joints in positions that look very uncomfortable to other people. I’m 54 now and am not as hyper mobile as I was in my younger years, but notice a lot of bruising, the scar tissue build up, thin skin, joints dislocating often. My pinky finger keeps dislocation while I’m typing this. I am more concerned now because I have the inappropriate tachycardia and know that my body is being flooded with cortisol. I have tendinitis in my elbow. Diagnosed with both tennis and golfer elbows. Just so much going on with my body and there are no drs around that want anything to do with it. I have been told by Pain Management that the focus to treat it is just to protect the joints and lots of physical therapy. My rheumatologist told me to get a diagnosis I need to see a geneticist. All the big hospitals around UTMB and Baylor have ended their clinics. I worked for orthopedics who say they will not manage it anymore. I’m confused on how it’s barely becoming known but at the same time medical professionals don’t want to treat it. We need more awareness and a good treatment plan. I would like to a standard diagnostic criteria, please keep your program going. The people who are finally starting to connect the dots and look into this as a cause of their symptoms and have no one around to support them and help them get answers NEED THIS PODCAST. We need answers. We need information. We need our voices heard. Thank you.

Thank you so much for all that you do. I always thought there was something wrong with me. I would for sports and school. I would get minor injuries very easily. I was always given corrective feedback for my posture or for not locking my knees. I was only given a diagnosis at the age of 56. I am now exploring what seemed like very oddallergy symptoms over the years, as well as digestive ones. Thanks to your podcast. I feel like I have the beginnings of a roadmap. As I am aging, I find that I have discomfort and joints all over my body, but now I understand why. I also have ADHD so I’m relieved to find that all of these things are somehow connected. I feel a little bit less like a zebra thanks to you. Kathryn

Thank you, Dr. Bluestein! You’ve been a huge help in navigating life.

This podcast is incredibly informative and helpful to the Hypermobile audience and beyond. The pelvic floor and Testosterone episodes were relevant and so chock full of nuggets, I had to pause several times to properly absorb it all. I love recommending this podcast to my dancer students as well as my Pilates clients alike. Thank you and keep going!

I really appreciate this podcast as someone diagnosed with the trifecta!

I feel so seen! Having just received an EDS & MCAS diagnosis following a MALS diagnosis at age 37, everything I’ve been experiencing is finally starting to make sense. Thank you for educating us on why!

So grateful this podcast for EDS patients. Access to this type of information from different experts is so helpful and inspiring!

I have been a long time Bendy Bodies listener and absolutely love this podcast. It’s an amazing resource for anyone who might be struggling with hypermobility - there is something to learn in every episode. As someone managing hEDS/MCAS/POTS, I love the wide range of topics the podcast covers and the depth of information. It’s been so helpful for me! Dr. Bluestein’s solo episodes are also incredibly valuable as is her perspective as a medical professional.

I am incredibly thankful to have found the Bendy Bodies Podcast! As both a mobility specialist working with hypermobile individuals and someone living with hEDS, this podcast has been an invaluable resource. The information shared by Dr. Bluestein and her expert guests has provided me with practical tools to better support my bendy clients and confidently refer out when necessary. On a personal level, listening to this podcast has been a deeply validating experience in a world where medical gaslighting is all too common. I highly recommend Bendy Bodies to anyone seeking a deeper understanding of hEDS and HSD—whether for their own medical journey or to better serve clients and patients. Ashley Rogers, FRCms

As a Doctor of Physical Therapy, I enjoy listening to this informative podcast for all sorts of hypermobility-related topics. I am a hypermobile individual with multiple autoimmune disorders, and I specialize in treating hypermobility and EDS. It’s great to hear current research from MDs who are leaders in this field. I also enjoy the dance related episodes as I treat many aerialists. Thank you for providing this high quality, evidence based content!

This podcast is a lifesaver for me as a mom navigating my teenage daughter’s hypermobility and all the related conditions. Thank you for putting this information together and helping people live their fullest lives.

Bendy Bodies is an amazing podcast! I’ve been listening since the beginning. I especially enjoyed the interviews with Dr Chopra. He has so many hacks he loves to share! If you have EDS or another type of hypermobility disorder, be informed- this is your go-to source for EDS and all its comorbidities.

I have learned so much about myself from listening to this podcast. I tell everyone I know with EDS and other comorbidities about this show. Thank you for creating this content.

Love this podcasts, especially the episodes with Dr. Chopra! So informative! I recommend it to my own patients for education.

I am so grateful for this podcast and the medical information Dr. Bluestein and her fabulous range of guests provide. Thank you!

I so appreciate this podcast and its ability to bring complex subject matter in an accessible way!!!! THANK YOU, Dr. Linda Bluestein!!!! As a parent of an adult with hEDS, MCAS, POTS, and many other related conditions, I struggle on a daily basis to educate others, especially providers, and other skeptics in our lives about the multiple various medical conditions that my offspring deals with—on top of being gender non-binary, non-neuro-typical, short, and female presenting—ie, ripe for dismissal on multiple counts. I have shared your podcast and will continue to do so.

This podcast is so informative and educational. It changes lives because knowledge is power, and Dr Bluestein has design this podcast so everyone has access to expert info. Thank you so much!

Just listened to this episode on upper extremity issues. I learned so much. Why did my shoulder get worse with PT and message? Explained. I had questions on ring splints and painful muscles. Answered. This was great information.

Really appreciate the hacks! Love to hear even more from Dr. Chopra and other EDS gurus. It’s nice to hear them speak in a question and answer format vs a lecture.

Episode 35 with Dr Maitland deserves 10 stars. If you want to learn about mast cell disorders, listen to that episode. Another doctor on a different podcast stated that Mast Cell Activation Syndrome is so prevalent in hypermobile people that he is more surprised when he meets a hypermobile patient that DOESN’T have MCAS than when he meets those that do. It is tragic how few doctors can recognize mast cell disorders, so for this information alone, this podcast is a treasure. It helps us bendies be better educated and therefore be “better” consumers of the healthcare system. Sometimes that means having to look hard for the right doctors, or maybe it means educating our own current doctors when they are willing to learn. The podcast, especially given that it is led by a doctor and then often interviews doctors - is a solid part of the education we need. Recommend!

I started listening to Bendy Body’s when they first launched. I’ve been hooked ever since. It is a place to come to learn through others experiences as well as forward thinking research. A gem for the eds community.

Bendy Bodies is a must listen for anyone living with or treating hypermobility. I am so grateful for this light in the dark.

I have recently been diagnosed with MCAS, POTs and hEDS and this was referred by my doctor as homework! Very informative! Has me crying, educating and relating completely!! Thank you.

Great resource that highlights so many topics that are not well-known in the medical community, but plague many people with hyper-mobility syndromes and EDS.

A

As a newly graduated DPT especially interested in performing arts PT, this is my #1 podcast. I binged the whole show In 1 week and now look forward to every new episode. I have learned so much that isn’t taught in school and get to connect with the amazing guests they have on this show. Linda & Jennifer! Just know that you are inspiring my future career. I hope one day to connect with you all in a professional capacity! THANK you for providing this information 🖤

I can’t thank you enough for starting this podcast, hypermobility is an area that is so under discussed and under researched in the medical community! Having been diagnosed with hypermobility and all the injuries that come along with it, it’s been extremely hard to find professionals to work with that understand how they can help and strengthen instead of pushing stretching on an already limber body. Thank you thank you creating this, can’t wait to listen to all of the episodes!!

Preach! This whole episode is groundbreaking and full of long overdue information. The last segment on the importance of core training is priceless.

This is an interesting and helpful podcast. I feel supported by both the knowledge and the attitudes of the host and guests. Thank you so much!

An amazingly informative solution focused podcast. If you are hypermobile, you NEED this. If you have health issues generally, I think this would be illuminating for most. If you have chronic pain, dive on in. The resources mentioned alone will be a huge help for your journey!! These amazing women take a holistic approach, and take all different perspectives in considering issues...they have great bendy minds!!

Phenomenal podcast with great evidence-based information... always a favorite!

I’m not a dancer but I’ve found the information presented to be quite relevant and helpful for me as a hypermobile mid-40’s person. Thank you for making the podcast happen!

This was a great listen, I learned so much! I treat so many dancers, excited to share this info.

Such a deep dive into the hypermobile body. Leaning so much from every episode.

Dr. Bluestein has done a wonderful job bringing new and enlightening experts to the forefront of Ehlers Danlos Syndrome. The conversations are informative and relatable in understanding this invisible condition. Thank you Dr. Bluestein!!!

Interesting and amazing job providing great insight into hyper-mobility disorders

This is a wonderful resource for anyone who is effected by hyper mobility. Highly recommend!😊

Does a great job presenting information about Hypermobility disorders and how to help those suffering from pain related to their extra flexibility!

A great podcast on a topic that isn't talked about or explored much. Definitely take a listen! Highly recommended!

Dr. Blue stein covers the breadth and depth of hypermobility disorders in such an intriguing and engaging light! A must listen for all physicians and allied health professionals.

Love the mix of mind/psychology and body topics. Wonderful for curious minds and people who like to move.

An insightful podcast for this specialized condition. As a primary care physician, I learned a lot from listening to the episodes.

Such a great 1st episode! Can’t wait for the next one!